#spoonie

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For those of you that follow me for health/PCOS related content, check out the latest post from my PCOS Account! EXCITING THINGS ARE COMING! 
#Repost @enchanted.jeni.pcos with @get_repost
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We’ve been hinting at exciting news coming; here’s ONE Announcement of the many Exciting Announcements We will be having in the near future! The @everypcosbody Podcast! Coming soon! Featuring @pcos_support_girl & @enchanted.jeni.pcos ! 🤩. Ideas for future shows? What would you like to hear? Leave us comments below! 🌎
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#everyPCOSbody
#PCOSisMoreThanCysters
#PCOS
#PCOSStrong
#PCOSPositivity
#Inclusive
#MentalHealth
#ReproductiveHealth
#PCOSSucks
#PCOSLife
#ChronicIllness
#PolycysticOvarySyndrome
#PCOSLifestyle
#PCOSwithoutTheBS
#PCOSisReal 
#PrioritizePCOS 
#PCOSAwareness 
#PCOSAdvocate 
#PCOSSupport 
#PCOSLifestyle 
#HormoneHealth 
#PCOSWeightloss 
#BodyAcceptance 
#InvisibleIllness 
#Spoonie
For those of you that follow me for health/PCOS related content, check out the latest post from my PCOS Account! EXCITING THINGS ARE COMING! #Repost @enchanted.jeni.pcos with @get_repost ・・・ We’ve been hinting at exciting news coming; here’s ONE Announcement of the many Exciting Announcements We will be having in the near future! The @everypcosbody Podcast! Coming soon! Featuring @pcos_support_girl & @enchanted.jeni.pcos ! 🤩. Ideas for future shows? What would you like to hear? Leave us comments below! 🌎 🌟 🌎 🌟 #everyPCOSbody #PCOSisMoreThanCysters #PCOS #PCOSStrong #PCOSPositivity #Inclusive #MentalHealth #ReproductiveHealth #PCOSSucks #PCOSLife #ChronicIllness #PolycysticOvarySyndrome #PCOSLifestyle #PCOSwithoutTheBS #PCOSisReal #PrioritizePCOS #PCOSAwareness #PCOSAdvocate #PCOSSupport #PCOSLifestyle #HormoneHealth #PCOSWeightloss #BodyAcceptance #InvisibleIllness #Spoonie
Owning it. ❤️🔥⁣
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I think I’m going to leave all this awesomeness on Betty my trusty rollator for a while. Or maybe make some more sashes!⁣
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Maybe one that says ‘babe with a mobility aid’? 😎😊⁣
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I’m serious! Sash suggestions! GO!⁣
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(PS>> in the next pic the white and grey chevron pouch was actually a @skiphop stroller caddy that I adapted to give me a little more storage without having to lean down too much to access. Cute right??)⁣ 📷: @heathhorejda 💕
Owning it. ❤️🔥⁣ ⁣ I think I’m going to leave all this awesomeness on Betty my trusty rollator for a while. Or maybe make some more sashes!⁣ ⁣ Maybe one that says ‘babe with a mobility aid’? 😎😊⁣ ⁣ I’m serious! Sash suggestions! GO!⁣ ⁣ (PS>> in the next pic the white and grey chevron pouch was actually a @skiphop stroller caddy that I adapted to give me a little more storage without having to lean down too much to access. Cute right??)⁣ 📷: @heathhorejda 💕
Celebrating the small things is important. Life is too short to stress on what you didn't do today. #spoonie #chronicillness #chronicpain
Celebrating the small things is important. Life is too short to stress on what you didn't do today. #spoonie #chronicillness #chronicpain
[ LIVING WITH MS ]

A huge part of having MS is being forced to constantly adapt to an ever changing body and mind. It's having the strength and patience to try new ways of doing things.

Sometimes, the "new way" of doing a task or an activity works for a bit until your body decides that this same "new way" that you worked so hard on no longer works.

And what I call the "adaptation cycle" starts over.

Sadly, there are other times when you can no longer adapt. Those times when you have tried everything and every way possible but nothing works.

You have to accept the truth and find ways to grieve as best as you can.
You lost something.

I have been playing guitar for the past 15 years and never have I thought I'd be facing this soon the reality of not being able to play anymore.

For the past couple of months, I have gone through the "adaptation cycle" more than I can count. I guess it probably is time to face the harsh truth but I simply don't know how.

I am not ready to lose this part of myself yet... #thisisms #ms #multiplesclerosis #sp #scleroseenplaques #ocularalbinism  #cpunk #cripplepunk #spoonie #spoonielife #disabled #disability  #vulnerabilityisstrength #sicknotweak  #invisibleillness #passion #grieve #washburn #guitar
[ LIVING WITH MS ] A huge part of having MS is being forced to constantly adapt to an ever changing body and mind. It's having the strength and patience to try new ways of doing things. Sometimes, the "new way" of doing a task or an activity works for a bit until your body decides that this same "new way" that you worked so hard on no longer works. And what I call the "adaptation cycle" starts over. Sadly, there are other times when you can no longer adapt. Those times when you have tried everything and every way possible but nothing works. You have to accept the truth and find ways to grieve as best as you can. You lost something. I have been playing guitar for the past 15 years and never have I thought I'd be facing this soon the reality of not being able to play anymore. For the past couple of months, I have gone through the "adaptation cycle" more than I can count. I guess it probably is time to face the harsh truth but I simply don't know how. I am not ready to lose this part of myself yet... #thisisms #ms #multiplesclerosis #sp #scleroseenplaques #ocularalbinism #cpunk #cripplepunk #spoonie #spoonielife #disabled #disability #vulnerabilityisstrength #sicknotweak #invisibleillness #passion #grieve #washburn #guitar
There's an app for everything these days, and chronic pain is no exception. Some of our patients have found pain tracking apps like @flaredown_endo really useful in tracking symptoms, logging treatments, and creating coping strategies. Do you use any chronic pain apps? Let us know which ones have helped you!
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#justbreathe #painrelief #chronicpain #pelvicpain #pelvichealth #chronicillness #chronicpelvicpain #endowarrior #chronicpainwarrior #spoonie #pelvicpainaware
There's an app for everything these days, and chronic pain is no exception. Some of our patients have found pain tracking apps like @flaredown_endo really useful in tracking symptoms, logging treatments, and creating coping strategies. Do you use any chronic pain apps? Let us know which ones have helped you! * * * #justbreathe #painrelief #chronicpain #pelvicpain #pelvichealth #chronicillness #chronicpelvicpain #endowarrior #chronicpainwarrior #spoonie #pelvicpainaware
Just Having One Of Those Days!!!
Just Having One Of Those Days!!!
I needed this today. My brain has been so foggy. I tried putting my cats 11 pound bag of hard food in the fridge and almost dumped a bottle of vitamins in a pitcher of water thinking it was drink mix. The past month or so my MS has been acting up, but I'm still fighting it. It will not get the better of me. Are you still fighting your disease?
I needed this today. My brain has been so foggy. I tried putting my cats 11 pound bag of hard food in the fridge and almost dumped a bottle of vitamins in a pitcher of water thinking it was drink mix. The past month or so my MS has been acting up, but I'm still fighting it. It will not get the better of me. Are you still fighting your disease?
The look you give when you’re tired of training. .
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🐾follow our pawnters! 🐾
@guidingpawsforthem
@daisymaetherattiesd 
@servicegiraffe
@servicedoofus
@leo.the.service.dog13
@tails_and.drool
@georgeintraining_
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Wanna be a pawnter? Dm us! 😊
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💜Use code “KL15” to get 15% off your order at @konaleashes! They donate 1lb of dog food to shelters with each purchase!! 💜
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Tags: #servicedog #sdit #dog #dogs #puppy #Rottweiler #rottie #puppyofinstagram #workingdog #floridadogsofig #servicerottweiler #germanrottweiler #dogsofinstagram #disneydog #floridadogsofig #florida #respectthevest #chronicillness #spoonie #spoonielife #gotspoons #servicedogintraining #lupus #lupuswarrior #depression #anxiety #autism
The look you give when you’re tired of training. . . . 🐾follow our pawnters! 🐾 @guidingpawsforthem @daisymaetherattiesd @servicegiraffe @servicedoofus @leo.the.service.dog13 @tails_and.drool @georgeintraining_ . . . Wanna be a pawnter? Dm us! 😊 . . . 💜Use code “KL15” to get 15% off your order at @konaleashes! They donate 1lb of dog food to shelters with each purchase!! 💜 . . . . Tags: #servicedog #sdit #dog #dogs #puppy #Rottweiler #rottie #puppyofinstagram #workingdog #floridadogsofig #servicerottweiler #germanrottweiler #dogsofinstagram #disneydog #floridadogsofig #florida #respectthevest #chronicillness #spoonie #spoonielife #gotspoons #servicedogintraining #lupus #lupuswarrior #depression #anxiety #autism
My blackberry ice cream, first of the summer. Tiny scoops. #forkandspoonie #ashevillenc #spoonie #blackberries  #blackberryicecream  #homemade  #icecream  #spooniecooks  #spooniestrong #nofilter
Good Morning, brosephinas! Happy dudes. I had a night full of nightmares involving school. I. Fucking. Hate. Those. So, we smoke! Clarice is ready and waiting with Glue from @pacificstone_brand in her bowl! Its been so good! Gives us both cerebral and body effects! I'm not doing much after yesterday, so feel free to tell me what YOU'RE doing! 💜💨💨 #multiplesclerosis #msawareness #multiplesclerosisisabitch #multiplesclerosiswarrior #multiplesclerosisawareness #mmjpatient #californiammj #msawareness #parasthesia #nervedamagesucks #mmj #marijuanaadvocate #710society #420society #terps #wakeandbake #activestoner #backwardscap #ganja #ganjagimp #fearisjustafeeling #spoonielife #spoonie #chronicillness #cannabisforchronicillness #vets4cbd #gogreenforcp
Good Morning, brosephinas! Happy dudes. I had a night full of nightmares involving school. I. Fucking. Hate. Those. So, we smoke! Clarice is ready and waiting with Glue from @pacificstone_brand in her bowl! Its been so good! Gives us both cerebral and body effects! I'm not doing much after yesterday, so feel free to tell me what YOU'RE doing! 💜💨💨 #multiplesclerosis #msawareness #multiplesclerosisisabitch #multiplesclerosiswarrior #multiplesclerosisawareness #mmjpatient #californiammj #msawareness #parasthesia #nervedamagesucks #mmj #marijuanaadvocate #710society #420society #terps #wakeandbake #activestoner #backwardscap #ganja #ganjagimp #fearisjustafeeling #spoonielife #spoonie #chronicillness #cannabisforchronicillness #vets4cbd #gogreenforcp
Life goes on. .
Whether we’re ready or not life goes on. My treatment is moving forward (unfortunately without proper diagnoses at the moment) but together my doctor and I are looking to reduce my symptoms. We know it’s a bandaid for now but the goal is to get to the root cause. I’ve been prescribed a small trial dose of Metoclopramide to hopefully help with my constant nausea, GI motility, and headaches. I also now have PRN Zofran if necessary. I’ve been referred to cardio for a tilt-table test and I may start a dose of Propranolol to help my heart rate which is consistently tachycardic. Also my rheumatology appointment has been moved up to this month (instead of September) thanks to a little help from friends!
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So life goes on and I have to go on with it. Thank you to everyone in this community for sharing your experiences and helping me feel less alone. ❤️
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#chronicillness #spoonie #chronicpain #undiagnosed #undiagnosedillness #chronicillnesscommunity #spoonielife
Life goes on. . Whether we’re ready or not life goes on. My treatment is moving forward (unfortunately without proper diagnoses at the moment) but together my doctor and I are looking to reduce my symptoms. We know it’s a bandaid for now but the goal is to get to the root cause. I’ve been prescribed a small trial dose of Metoclopramide to hopefully help with my constant nausea, GI motility, and headaches. I also now have PRN Zofran if necessary. I’ve been referred to cardio for a tilt-table test and I may start a dose of Propranolol to help my heart rate which is consistently tachycardic. Also my rheumatology appointment has been moved up to this month (instead of September) thanks to a little help from friends! . So life goes on and I have to go on with it. Thank you to everyone in this community for sharing your experiences and helping me feel less alone. ❤️ . #chronicillness #spoonie #chronicpain #undiagnosed #undiagnosedillness #chronicillnesscommunity #spoonielife
Recently I’ve been so busy trying to start my T-shirt fundraiser thing and organize moving countries. It’s really difficult to fit everything in. So I’m about to look after myself and preform self care by eating ice cream and watching Veronica Mars on Hulu and turn all social media off!!!! I’ve been so busy doing everything that I’ve done the easy thing and let self care down.. and with a chronic illness that’s dangerous. #spoonie #wherethetiredgirlsare #disability #chronicillness #wheelchair #chronicloveclub #bossbitch #qoot #create #autoimmunedisease
Recently I’ve been so busy trying to start my T-shirt fundraiser thing and organize moving countries. It’s really difficult to fit everything in. So I’m about to look after myself and preform self care by eating ice cream and watching Veronica Mars on Hulu and turn all social media off!!!! I’ve been so busy doing everything that I’ve done the easy thing and let self care down.. and with a chronic illness that’s dangerous. #spoonie #wherethetiredgirlsare #disability #chronicillness #wheelchair #chronicloveclub #bossbitch #qoot #create #autoimmunedisease
I've got a cold which is not fun when dealing with chronic pain in my whole chest area. So naturally I've been in bed with both of my heating pads on high and a good book. I'm also super lucky to have company this week 😍❤️
I've got a cold which is not fun when dealing with chronic pain in my whole chest area. So naturally I've been in bed with both of my heating pads on high and a good book. I'm also super lucky to have company this week 😍❤️
#spoonielife When you clamber into the car in your PJ's to get ice-cream because that's the only thing you can stomach eating. Woohoo for a #crashday. I woke up feeling pretty super awful and food just hasn't been my friend 🤢 Here's hoping I can rest up enough to fly home this weekend and then party with my fam on the Tuesday 💃.
If you're wondering it was 🍦Oreo gelato 🍦 and it was amazing, I'll miss the ice-cream once we are home. 
I managed to get a NEW BLOG POST up on the blog so find the link in my bio if you are interested! 🔗

#sendhelp #pwME #crashlife #PEM #myalgicencephalopathy #myalgicencephalomyelitis #mecfs #cfs #millionsmissing #icecreammakeslifebetter #spoonie #chronicillness #canyouseeMEnow #wherethetiredgirlsare #seeingmeinreality #SMIRblog #livingmybestlife
#spoonielife When you clamber into the car in your PJ's to get ice-cream because that's the only thing you can stomach eating. Woohoo for a #crashday. I woke up feeling pretty super awful and food just hasn't been my friend 🤢 Here's hoping I can rest up enough to fly home this weekend and then party with my fam on the Tuesday 💃. If you're wondering it was 🍦Oreo gelato 🍦 and it was amazing, I'll miss the ice-cream once we are home. I managed to get a NEW BLOG POST up on the blog so find the link in my bio if you are interested! 🔗 #sendhelp #pwME #crashlife #PEM #myalgicencephalopathy #myalgicencephalomyelitis #mecfs #cfs #millionsmissing #icecreammakeslifebetter #spoonie #chronicillness #canyouseeMEnow #wherethetiredgirlsare #seeingmeinreality #SMIRblog #livingmybestlife
Today I need to talk about SELF-ADVOCACY. I brought it up a few posts back relating to my health and the struggles I have had in this discovery path. Having to speak up for myself, voice my pain and practically approach my healthcare professionals with a plan for my own care and advocate, advocate, advocate 🙋🏼‍♀️
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I want to talk in broader terms. Self-advocacy is a form of SELF-LOVE 💛 Speaking up for your needs and wants is not being negative, it’s not being difficult or a nuance to others; it’s knowing yourself, putting your happiness at the forefront and doing what it takes to get there 👊🏼
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Last week, I finally got to see a GI specialist 🙌🏼 Came in with my symptoms, my concerns, my pain and my plan for healing. Putting it all out there the best I could. I don’t know everything, not even the diagnosis nor the root cause but I left with an EGD and Sigmoidoscopy booked for next month. I know I have gut issues and I know I have pain. So I will keep advocating for a better quality of life!
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Know your worth! Get a second opinion. Follow your gut literally and figuratively. Self-advocacy is a way of life, to truly embrace, think 360. Advocate at work, with your family and friends, and even with strangers. It’s ok to SAY NO. It’s ok to say something else works better for you. It’s ok to have your own opinions and be your own person. It’s ok to BE YOU... Be the happiness and healthiest version of you 💛
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I don’t know much. I know I am c2s.
Today I need to talk about SELF-ADVOCACY. I brought it up a few posts back relating to my health and the struggles I have had in this discovery path. Having to speak up for myself, voice my pain and practically approach my healthcare professionals with a plan for my own care and advocate, advocate, advocate 🙋🏼‍♀️ ✨ I want to talk in broader terms. Self-advocacy is a form of SELF-LOVE 💛 Speaking up for your needs and wants is not being negative, it’s not being difficult or a nuance to others; it’s knowing yourself, putting your happiness at the forefront and doing what it takes to get there 👊🏼 ✨ Last week, I finally got to see a GI specialist 🙌🏼 Came in with my symptoms, my concerns, my pain and my plan for healing. Putting it all out there the best I could. I don’t know everything, not even the diagnosis nor the root cause but I left with an EGD and Sigmoidoscopy booked for next month. I know I have gut issues and I know I have pain. So I will keep advocating for a better quality of life! ✨ Know your worth! Get a second opinion. Follow your gut literally and figuratively. Self-advocacy is a way of life, to truly embrace, think 360. Advocate at work, with your family and friends, and even with strangers. It’s ok to SAY NO. It’s ok to say something else works better for you. It’s ok to have your own opinions and be your own person. It’s ok to BE YOU... Be the happiness and healthiest version of you 💛 ✨ ✨ I don’t know much. I know I am c2s.
I love how many pictures there are of me stuffing my face with popcorn on set the other day! 🙈🙈🙈...
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#onset #setlife #coeliac #glutenfree #gf #actorslife #actress #film #movie #shortfilm #hollywood #popcorn #brunette #cambridge #shakespeare #macbeth #lovemyjob #potsie #brunette #nofearshakespeare #studio #breaktime #britishfilm #propercorn #hungry #tuesday #spoonie #celiac
Last year's BLUE carpet for the premiere of ReelAbilities Film Festival: Los Angeles.  Glad to have @dannywoodburn and his wife Amy at the opening!
Last year's BLUE carpet for the premiere of ReelAbilities Film Festival: Los Angeles. Glad to have @dannywoodburn and his wife Amy at the opening!
Things to be grateful for. ⁣⁠⠀
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#PalomaHealth
Things to be grateful for. ⁣⁠⠀ ⁣⁠⠀ #PalomaHealth
Here we go again 🥺🥺🤦‍♀️🤦‍♀️ #butyoudontlooksick #gastricdisease #spoonie #ifeellikedeathrightnow #hospital #ER
Here we go again 🥺🥺🤦‍♀️🤦‍♀️ #butyoudontlooksick #gastricdisease #spoonie #ifeellikedeathrightnow #hospital #ER
Day two: "what illness/illnesses do you have?" Well... I have diabetes, type 1. And for a long period of time I suffered from diabulimia. This has resulted in nerve damage in my legs and feet, and in my intestines, causing gastroparesis. On top of this I have retinopathy, hypothyroidism, high cholesterol and high blood pressure. Phew 😅 that's some list. 
I am also a survivor of retinoblastoma and I've had a funding operation for hitial hernia. I'm pretty much half man, half machine 😂 
#chronichpain #gastroparesis #smallfiberneuropathy #spoonie #spoonielife #30dayschallenge #diagnosis #type1diabetes #retinoblastoma
Day two: "what illness/illnesses do you have?" Well... I have diabetes, type 1. And for a long period of time I suffered from diabulimia. This has resulted in nerve damage in my legs and feet, and in my intestines, causing gastroparesis. On top of this I have retinopathy, hypothyroidism, high cholesterol and high blood pressure. Phew 😅 that's some list. I am also a survivor of retinoblastoma and I've had a funding operation for hitial hernia. I'm pretty much half man, half machine 😂 #chronichpain #gastroparesis #smallfiberneuropathy #spoonie #spoonielife #30dayschallenge #diagnosis #type1diabetes #retinoblastoma
It's that time again!! Every 5 weeks I get my Remicade Infusion for my Crohn's disease. It takes a few hours, about 3 hours total. I get really tired and hungry the day of. Since this weakens my immune system I'm more likely to catch something. At least my @lillypulitzer outfit is so cheerful. It really makes me so much happier
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#remicade #remicadeinfusion #crohns #crohnsdisease #ulcerativecolitis #ibd #ibdawareness #weightlossjourney #weightlosstransformation #lillypulitzer #fortheloveoflilly #monogram #monogrameverything #ravenhairbeauty #brunette #smile #smiles #longhair #resort365 #infusion #gastroparesis #spoonie #crohnsawareness #crohnsdiet #50lbsdown #capecod #prepstyle #ootd #selflove #endlesssummer
It's that time again!! Every 5 weeks I get my Remicade Infusion for my Crohn's disease. It takes a few hours, about 3 hours total. I get really tired and hungry the day of. Since this weakens my immune system I'm more likely to catch something. At least my @lillypulitzer outfit is so cheerful. It really makes me so much happier . . . . #remicade #remicadeinfusion #crohns #crohnsdisease #ulcerativecolitis #ibd #ibdawareness #weightlossjourney #weightlosstransformation #lillypulitzer #fortheloveoflilly #monogram #monogrameverything #ravenhairbeauty #brunette #smile #smiles #longhair #resort365 #infusion #gastroparesis #spoonie #crohnsawareness #crohnsdiet #50lbsdown #capecod #prepstyle #ootd #selflove #endlesssummer
Just finished adding in my India pictures and journaling to our adventure book!! My husband gave this to me this past Christmas, after we had just gotten back from a once in a lifetime experience in India for a friend’s wedding! I’m so excited for us to travel the world and fill up this book with so many amazing memories!! 🥰 Because we can! 💚 Next stop, Sweden and Finland! ✈️🌎🗺
Just finished adding in my India pictures and journaling to our adventure book!! My husband gave this to me this past Christmas, after we had just gotten back from a once in a lifetime experience in India for a friend’s wedding! I’m so excited for us to travel the world and fill up this book with so many amazing memories!! 🥰 Because we can! 💚 Next stop, Sweden and Finland! ✈️🌎🗺
• CURRY NIGHT • @pinchofnom Super Simple Chicken Curry with pilau rice 🥘 Pretty accurate description too! Dead quick and tasty 🙂
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#rwl #rwlcommunity #rwlfitties #resultswithlucy #strongnotskinny #teamnobs #fff #workout #fitspo #healthylifestyle #newbeginnings #fitnessmotivation #spoonie #cfs #me #eatwellwithlucy #resultswithcecilia #nutrition #thebodycoach #foodblog #balance #megsmovement #fakeaway #pinchofnom #nobsguide
"If we feel together, we'll feel better."
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Things I love: bracelets and normalizing mental health disorders and autism. Cause the stigma needs to end.
@byathreadsite has these cute, comfy and simple bracelets that are color coordinated for specific meanings. The lovely lavender bracelet I'm wearing here is for generalized sleep problems. I personally suffer from insomnia and night terrors. It's one of the lesser known problems I have. I don't talk about it as much as I talk about my other disorders.
I believe something so simple can have such a great impact.
Normalizing these conditions is the biggest step into ending the stigma. These bracelets are a small nod towards it. You don't have to have a neon sign and hash tags like I do.
Oh and they donate a percentage of their profits to NAMI (National Alliance of Mental Illness) So your support in getting these cute bracelets is paying it forward to others who suffer with mental illness as well.
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Check out byathread.be (link also in my bio) to look at the products they currently have available. I'm hopeful that with support they'll produce even more options.
~Use my promo code 'Lillium30' on your order to save a Lil $$$$!!!! .
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#byathread #mentalhealth #mentalhealthawareness #mentalwellness #ptsd #bpd #depression #endthestigma #mentalhealthwarrior #spoonielife #spoonie #chronicillness #sicklife #chronicillnesswarrior #eds #pots #disablilityandme #disabledandcute #legallyblind #anxiety #sponsored #discount
"If we feel together, we'll feel better." . Things I love: bracelets and normalizing mental health disorders and autism. Cause the stigma needs to end. @byathreadsite has these cute, comfy and simple bracelets that are color coordinated for specific meanings. The lovely lavender bracelet I'm wearing here is for generalized sleep problems. I personally suffer from insomnia and night terrors. It's one of the lesser known problems I have. I don't talk about it as much as I talk about my other disorders. I believe something so simple can have such a great impact. Normalizing these conditions is the biggest step into ending the stigma. These bracelets are a small nod towards it. You don't have to have a neon sign and hash tags like I do. Oh and they donate a percentage of their profits to NAMI (National Alliance of Mental Illness) So your support in getting these cute bracelets is paying it forward to others who suffer with mental illness as well. . Check out byathread.be (link also in my bio) to look at the products they currently have available. I'm hopeful that with support they'll produce even more options. ~Use my promo code 'Lillium30' on your order to save a Lil $$$$!!!! . . . . . . . . #byathread #mentalhealth #mentalhealthawareness #mentalwellness #ptsd #bpd #depression #endthestigma #mentalhealthwarrior #spoonielife #spoonie #chronicillness #sicklife #chronicillnesswarrior #eds #pots #disablilityandme #disabledandcute #legallyblind #anxiety #sponsored #discount
What is the difference between complaining and speaking out? According to Eckhart Tolle, complaining is "nonacceptance" and simply negative. But when you speak out, you've found your power and what had been negative is now working for you in a positive way.⁣
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6 years ago, when I was contemplating starting a blog to share my health story, I was hesitant because I never wanted to be perceived as a complainer. But eventually I realized that speaking truthfully and openly about all that I had been through and was continuing to experience, I was actually not complaining. I was finding my voice, I was finding acceptance, AND I was making things different.⁣
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Eventually I turned my negativity into a business and now I am helping other people recover their health through 1:1 nutrition coaching as a Nutritional Therapy Practitioner and AIP Certified Coach. Starting on August 1, I'll again accept new clients for 6 month, 3 month, and 1 month packages of intensive support. If you'd like to talk with me about what that means, sign up for a no-obligation discovery consultation today via the clickable link in my profile.
What is the difference between complaining and speaking out? According to Eckhart Tolle, complaining is "nonacceptance" and simply negative. But when you speak out, you've found your power and what had been negative is now working for you in a positive way.⁣ ⁣ 6 years ago, when I was contemplating starting a blog to share my health story, I was hesitant because I never wanted to be perceived as a complainer. But eventually I realized that speaking truthfully and openly about all that I had been through and was continuing to experience, I was actually not complaining. I was finding my voice, I was finding acceptance, AND I was making things different.⁣ ⁣ Eventually I turned my negativity into a business and now I am helping other people recover their health through 1:1 nutrition coaching as a Nutritional Therapy Practitioner and AIP Certified Coach. Starting on August 1, I'll again accept new clients for 6 month, 3 month, and 1 month packages of intensive support. If you'd like to talk with me about what that means, sign up for a no-obligation discovery consultation today via the clickable link in my profile.
Before Accepting A Label 🏷 
Do two things:
1) Focus on Expert Opinion. 
2) Realize You Are The Expert

You Matter. The world needs you. #nolabeldefinesme
Before Accepting A Label 🏷 Do two things: 1) Focus on Expert Opinion. 2) Realize You Are The Expert You Matter. The world needs you. #nolabeldefinesme
Was at the Gastro clinic and they still think it's my formula making me sick but they are checking for an infection. I did get my nutritionist app. moved up to get the formula changed with less carbs. Hopefully it helps, if not then we will have to further investigate. I really hope it's just the formula because I don't want another issue to deal with. #gastroparesis #gastrointestinalproblems #spoonie. #abdominalepilepsy #interstitialcystitis #endometriosis
Was at the Gastro clinic and they still think it's my formula making me sick but they are checking for an infection. I did get my nutritionist app. moved up to get the formula changed with less carbs. Hopefully it helps, if not then we will have to further investigate. I really hope it's just the formula because I don't want another issue to deal with. #gastroparesis #gastrointestinalproblems #spoonie. #abdominalepilepsy #interstitialcystitis #endometriosis
This is my first self injection at my new job. I started last Monday and it’s been distracting making the transition. I’ll be posting more about that later! Sorry I’ve been away. ❤️
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#perniciousanemia #perniciousanaemia #spoonie #chronicillness #autoimmunedisease #unchargeables
This is my first self injection at my new job. I started last Monday and it’s been distracting making the transition. I’ll be posting more about that later! Sorry I’ve been away. ❤️ • #perniciousanemia #perniciousanaemia #spoonie #chronicillness #autoimmunedisease #unchargeables
Oh my days some hella mood swings today!! 1 week post op! One moment I feel determined to fight to get better the next I’m emotional and crying. No idea what that’s all about! #moodswings #moodswingsbelike #endometriosis #endo #chronicillness #endowarriors #chronicpain #surgeryrecovery #laparoscopy #spoonie #hormones #chronicfatigue #mood
Oh my days some hella mood swings today!! 1 week post op! One moment I feel determined to fight to get better the next I’m emotional and crying. No idea what that’s all about! #moodswings #moodswingsbelike #endometriosis #endo #chronicillness #endowarriors #chronicpain #surgeryrecovery #laparoscopy #spoonie #hormones #chronicfatigue #mood
What's your super power
www.SillyGrinStudios.com 
Our shop is brimming with over 370 masks to choose from in 6 sizes!
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#sillygrinstudios #stylist #surgicalmask #mask #traveler #travelmask #groomer #germmask #groomermask #nailtech #spoonielife #spoonie #flumask #healthylife #rdh #bsn #nailtechmask #flumask  #healthaid #etsy #transplant #chemo #chemomask #chronicillness #tattooartist
this has been such a hard week. my migraine attacks have flared up tenfold and i’m so so tired. every day is a constant struggle and i just really want one day where i feel okay. it’s too damn hard to fight every day. .
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#migrainewarrior #migraine #chronicillness #chronicillnessawareness #migrainebuddy #migraineawareness #spoonie
this has been such a hard week. my migraine attacks have flared up tenfold and i’m so so tired. every day is a constant struggle and i just really want one day where i feel okay. it’s too damn hard to fight every day. . . . . . . . #migrainewarrior #migraine #chronicillness #chronicillnessawareness #migrainebuddy #migraineawareness #spoonie
Some days it doesn’t feel like I can “do anything”
Some days it doesn’t feel like I can “stay positive”
Some days it doesn’t feel like I can “succeed”

However, there are days when I know I can do all these things despite how sick or hopeless my situation seems at the time. We can all push through. I’ve always had big goals and I know how it feels to have your dreams limited by your illness. Even though my dreams/goals have had to change a little bit I still know I am going to be successful. I won’t let my health condition take away the plan I had for myself. 
I encourage anyone going through what seems like a hopeless illness to not let it win. Don’t let it take away your spark and hope for life. Whether your goal is to climb Mt Everest or just get off the couch today. You can do it 💪🏼
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#autoimmunedisease #positivity #spoonie #spoonielife #crohns #crohnsdisease #remicade #humira #ulcerativecolitis #endometriosis #goals #fighter
Some days it doesn’t feel like I can “do anything” Some days it doesn’t feel like I can “stay positive” Some days it doesn’t feel like I can “succeed” However, there are days when I know I can do all these things despite how sick or hopeless my situation seems at the time. We can all push through. I’ve always had big goals and I know how it feels to have your dreams limited by your illness. Even though my dreams/goals have had to change a little bit I still know I am going to be successful. I won’t let my health condition take away the plan I had for myself. I encourage anyone going through what seems like a hopeless illness to not let it win. Don’t let it take away your spark and hope for life. Whether your goal is to climb Mt Everest or just get off the couch today. You can do it 💪🏼 • • • #autoimmunedisease #positivity #spoonie #spoonielife #crohns #crohnsdisease #remicade #humira #ulcerativecolitis #endometriosis #goals #fighter
Yesterday was rough. I had an appointment at my GI office... which I thought would lead me to getting answers and a solid plan in place. But it most definitely did not. I left feeling defeated, frustrated, angry, sad... basically all the feels. 💔 •
The plan of action is to wait. Even more. Started having relapse symptoms over 7 months ago, yet they want yet another procedure proving I’m inflamed and not controlled before changing meds. 😔 •
I get it- my Crohn’s has always been tricky, we’ve never found a medication that worked to control both my physical symptoms I’m feeling AND that made my clinical symptoms (aka scopes, labs, etc) look clean. It’s always been one or the other. •
I could go on and on, but just know I’m human. I get frustrated on this journey just like the rest of you. I can spit optimism from the rooftops all day long, but there are still things that will drag me down to the 1st floor sometimes. 💜 •
But I’ll keep trucking. I’ll keep going because I want my life to continue moving in the direction I want it to without stopping to let my health take over again. .
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#crohns #crohnsdisease #crohnsfighter #crohnswarrior #crohnsawareness #crohnslife #crohnsandcolitis #colitis #ulcerativecolitis #ibd #ibdawareness #ibdwarrior #ibdsuperheroes #friendswithcrohns #chronicillness #chronicillnessawareness #spoonie #invisibleillness #autoimmune #autoimmunedisease
Yesterday was rough. I had an appointment at my GI office... which I thought would lead me to getting answers and a solid plan in place. But it most definitely did not. I left feeling defeated, frustrated, angry, sad... basically all the feels. 💔 • The plan of action is to wait. Even more. Started having relapse symptoms over 7 months ago, yet they want yet another procedure proving I’m inflamed and not controlled before changing meds. 😔 • I get it- my Crohn’s has always been tricky, we’ve never found a medication that worked to control both my physical symptoms I’m feeling AND that made my clinical symptoms (aka scopes, labs, etc) look clean. It’s always been one or the other. • I could go on and on, but just know I’m human. I get frustrated on this journey just like the rest of you. I can spit optimism from the rooftops all day long, but there are still things that will drag me down to the 1st floor sometimes. 💜 • But I’ll keep trucking. I’ll keep going because I want my life to continue moving in the direction I want it to without stopping to let my health take over again. . . . . . . #crohns #crohnsdisease #crohnsfighter #crohnswarrior #crohnsawareness #crohnslife #crohnsandcolitis #colitis #ulcerativecolitis #ibd #ibdawareness #ibdwarrior #ibdsuperheroes #friendswithcrohns #chronicillness #chronicillnessawareness #spoonie #invisibleillness #autoimmune #autoimmunedisease
Germs don't take a break even during the heat wave
www.SillyGrinStudios.com 
Our shop is brimming with over 370 masks to choose from in 6 sizes!
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#sillygrinstudios #stylist #surgicalmask #mask #traveler #travelmask #groomer #germmask #groomermask #nailtech #spoonielife #spoonie #flumask #healthylife #rdh #bsn #nailtechmask #flumask  #healthaid #etsy #transplant #chemo #chemomask #chronicillness #tattooartist
Germs don't take a break even during the heat wave www.SillyGrinStudios.com Our shop is brimming with over 370 masks to choose from in 6 sizes! . . #sillygrinstudios #stylist #surgicalmask #mask #traveler #travelmask #groomer #germmask #groomermask #nailtech #spoonielife #spoonie #flumask #healthylife #rdh #bsn #nailtechmask #flumask  #healthaid #etsy #transplant #chemo #chemomask #chronicillness #tattooartist
If you rub shoulders in social activist spaces or spaces that uplift diversity, then you’ve heard the term “-passing.” This traditionally comes with prefixes like “white-passing,” “cis-passing,” “straight-passing,” and extends to the safety net that comes from the privilege of being perceived as “the norm.” When we talk about invisible illnesses and invisible disabilities, we frame the conversation as either A. a little-known illness that is difficult to identify/diagnose, or B. a more common chronic condition that is not apparently obvious to the average person. We typically lament the invisible nature of these conditions—rightfully so. But if may not be often that we recognize how we dampen our symptoms to evade civilian or clinical attention.

This is “wellness-passing.” This is wearing clothes and accessories that hide maladies, orthotics, scars or deformities. This is wearing makeup that covers skin differences. This is downplaying pain or the severity of impairment from symptoms.

This is what we do when we’re trying to maintain employment. This is what we do to evade prolonged hospital admissions. This is what we do to dodge invasive surgeries. This is how we avoid sneers or soul-crushing questions from children who want to know why you're “like that”

This is also how we participate as bystanders to the continued abuse and exclusion of chronically ill and disabled folk. This is how we are complicit in systemic ableism. By quietly conforming to expectations of our “worthiness,” we're disenfranchising our siblings and also devaluing and defaming the validity of our own conditions and their worthiness of being treated appropriately.

I’m absolutely participatory in this. I’m not ashamed that I’ve protected myself from the cruelest abuses that this world has to offer, but I am ashamed that it’s taken me this long to be a more proactive advocate for the folks who are not in a position to be less visible. Part of putting myself out there and forcing myself to become un-invisible is that I want to be not only a better advocate for myself, but also a better ally for the folks who are in no position or are lacking the tools to advocate in the same way.
If you rub shoulders in social activist spaces or spaces that uplift diversity, then you’ve heard the term “-passing.” This traditionally comes with prefixes like “white-passing,” “cis-passing,” “straight-passing,” and extends to the safety net that comes from the privilege of being perceived as “the norm.” When we talk about invisible illnesses and invisible disabilities, we frame the conversation as either A. a little-known illness that is difficult to identify/diagnose, or B. a more common chronic condition that is not apparently obvious to the average person. We typically lament the invisible nature of these conditions—rightfully so. But if may not be often that we recognize how we dampen our symptoms to evade civilian or clinical attention. This is “wellness-passing.” This is wearing clothes and accessories that hide maladies, orthotics, scars or deformities. This is wearing makeup that covers skin differences. This is downplaying pain or the severity of impairment from symptoms. This is what we do when we’re trying to maintain employment. This is what we do to evade prolonged hospital admissions. This is what we do to dodge invasive surgeries. This is how we avoid sneers or soul-crushing questions from children who want to know why you're “like that” This is also how we participate as bystanders to the continued abuse and exclusion of chronically ill and disabled folk. This is how we are complicit in systemic ableism. By quietly conforming to expectations of our “worthiness,” we're disenfranchising our siblings and also devaluing and defaming the validity of our own conditions and their worthiness of being treated appropriately. I’m absolutely participatory in this. I’m not ashamed that I’ve protected myself from the cruelest abuses that this world has to offer, but I am ashamed that it’s taken me this long to be a more proactive advocate for the folks who are not in a position to be less visible. Part of putting myself out there and forcing myself to become un-invisible is that I want to be not only a better advocate for myself, but also a better ally for the folks who are in no position or are lacking the tools to advocate in the same way.
His face when I make him take a photo 😅😆 what would I do without you 💗 The last 10 days or so have been horrific my health has just deteriorated - I think it’s as a result of stress. I’ve been under a lot of stress the last few months which I don’t post about on here - people might think I share a lot of my life on here because I’m so open about my health but really health is the only part of my life I’m open about and choose to share. With the hope it might help someone somewhere! As a result of all the stress my body has taken a tumble - our bodies are not sustained to run on anxiety / adrenaline / stress - ultimately they will crash. I’ve struggled with various severities of depression on & off for years - mostly as a consequence of everything I’ve been through. Improving so much and losing the progress all so quickly means I haven’t felt this depressed in months and it’s an awful place to be. Where everything seems dark and there is no light. All you feel is nothingness and emptiness. I hate feeling like this more than anything - all I want is for it to go away. For a relationship depression is a scary and challenging thing because when one is depression they aren’t there ‘usual’ self - I seek comfort in the fact Dans says it’s totally understandable why I’m depressed. And so another day goes by and another challenge we face. I hope one day there will be less challenges and more laughs ❤️ This weekend we are supposed to be going to the Cotswolds but I don’t feel well enough. If a miracle happens and we can make the journey there and I can get out of bed / the hotel - does anyone have any recommendations? Has anyone been to Chipping Campden or Chipping Norton? They look like cute places to see 🌿🌱
His face when I make him take a photo 😅😆 what would I do without you 💗 The last 10 days or so have been horrific my health has just deteriorated - I think it’s as a result of stress. I’ve been under a lot of stress the last few months which I don’t post about on here - people might think I share a lot of my life on here because I’m so open about my health but really health is the only part of my life I’m open about and choose to share. With the hope it might help someone somewhere! As a result of all the stress my body has taken a tumble - our bodies are not sustained to run on anxiety / adrenaline / stress - ultimately they will crash. I’ve struggled with various severities of depression on & off for years - mostly as a consequence of everything I’ve been through. Improving so much and losing the progress all so quickly means I haven’t felt this depressed in months and it’s an awful place to be. Where everything seems dark and there is no light. All you feel is nothingness and emptiness. I hate feeling like this more than anything - all I want is for it to go away. For a relationship depression is a scary and challenging thing because when one is depression they aren’t there ‘usual’ self - I seek comfort in the fact Dans says it’s totally understandable why I’m depressed. And so another day goes by and another challenge we face. I hope one day there will be less challenges and more laughs ❤️ This weekend we are supposed to be going to the Cotswolds but I don’t feel well enough. If a miracle happens and we can make the journey there and I can get out of bed / the hotel - does anyone have any recommendations? Has anyone been to Chipping Campden or Chipping Norton? They look like cute places to see 🌿🌱
Full moon & my cycle. It's been a trying past 2 days.

#lymedisease #lymedontkillmyvibe #LYMIE #SPOONIE #FIBRO #fibromyalgia #fibrowarrior #lymewarriors
Full moon & my cycle. It's been a trying past 2 days. #lymedisease #lymedontkillmyvibe #LYMIE #SPOONIE #FIBRO #fibromyalgia #fibrowarrior #lymewarriors
35 hours left until voting resets! Let's get to first or hold second to avoid elimination tomorrow night. Vote for free every 24 hours; link is in my bio!

Today (until 11PM EDT) is the last 2 for $1 MusiCares votes day, too, if that's a cause you want to support!

#model #photographer #throughthelookingglass #inkedcovergirl2019 #magazine #magazinecover #boudoir #tattoo #steampunkfashion #steampunk #bed #corset #disabled #spoonie #bpd #diet #workinprogress #help #vote #chronicillness #chronicpain #anxiety #emetophobia #depression #ptsd #generalizedanxietydisorder
35 hours left until voting resets! Let's get to first or hold second to avoid elimination tomorrow night. Vote for free every 24 hours; link is in my bio! Today (until 11PM EDT) is the last 2 for $1 MusiCares votes day, too, if that's a cause you want to support! #model #photographer #throughthelookingglass #inkedcovergirl2019 #magazine #magazinecover #boudoir #tattoo #steampunkfashion #steampunk #bed #corset #disabled #spoonie #bpd #diet #workinprogress #help #vote #chronicillness #chronicpain #anxiety #emetophobia #depression #ptsd #generalizedanxietydisorder
FMT capsules are the newest way of delivering the disease-curing treatment of poop transplants. They have shown to be just as effective as traditional methods, yet far less invasive. They also hold the possibility of more accessible FMTs for all. Find out how they are made and what they can treat. Link in bio!
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#fmt #pills #capsule #microbiome #medicine #guthealing #spoonie #chronicillness #science #autoimmune #crohnswarrior #colitis #fighting #disease #medication #anitbiotics #bacteria #microbiology #diet #wellness #healthyliving
FMT capsules are the newest way of delivering the disease-curing treatment of poop transplants. They have shown to be just as effective as traditional methods, yet far less invasive. They also hold the possibility of more accessible FMTs for all. Find out how they are made and what they can treat. Link in bio! . . . . #fmt #pills #capsule #microbiome #medicine #guthealing #spoonie #chronicillness #science #autoimmune #crohnswarrior #colitis #fighting #disease #medication #anitbiotics #bacteria #microbiology #diet #wellness #healthyliving
On the other hand, RA patients are less likely than those with osteoarthritis to develop a dangerous blood clot.⁠
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Click link in bio to learn more. ⁠
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#chronicdisease #spoonie #spoonies ⁠#jointreplacement⁠
#ChronicLife #InvisibleDisease #RheumatoidArthritis⁠⠀⁠
#AnkylosingSpondylitis #PsoriaticArthritis #osteoarthritis⁠
On the other hand, RA patients are less likely than those with osteoarthritis to develop a dangerous blood clot.⁠ .⁠ Click link in bio to learn more. ⁠ .⁠ .⁠ .⁠ #chronicdisease #spoonie #spoonies#jointreplacement⁠ #ChronicLife #InvisibleDisease #RheumatoidArthritis⁠⠀⁠ #AnkylosingSpondylitis #PsoriaticArthritis #osteoarthritis⁠
Sometimes my depression becomes crippling and my sense of reality is completely warped. I get so lost in the rabbit hole of my distortions that they become my reality and I spiral.
Y’all know how it goes.
🤷🏼‍♀️
Today has been particularly difficult.
While I continue to forge my way through the constant exhaustion that is recovery, its easy to become overwhelmed.
🙃
Which is why I have felt like a jerk all morning. Because, today, is this magnificent creature’s birthday and I can’t get out to spoil him much.
And, as I sat in bed weeping over the fact that all I want is to be good enough for my dogs, I looked up and saw this face examining me.
When I said hello to him and apologized for not being able to give him an amazing birthday, old man Beaux stood up and pushed his way into my lap where he remains laying down. 
Happy 10th birthday to the sweetest, most loving, silly, patient, little man I could ever ask for. I am so lucky to have had you by my side for a decade. Thank you for taking care of me on your birthday, and for being the best companion ever. I couldn’t have made it this far without you ❤️🐶🎂
Sometimes my depression becomes crippling and my sense of reality is completely warped. I get so lost in the rabbit hole of my distortions that they become my reality and I spiral. Y’all know how it goes. 🤷🏼‍♀️ Today has been particularly difficult. While I continue to forge my way through the constant exhaustion that is recovery, its easy to become overwhelmed. 🙃 Which is why I have felt like a jerk all morning. Because, today, is this magnificent creature’s birthday and I can’t get out to spoil him much. And, as I sat in bed weeping over the fact that all I want is to be good enough for my dogs, I looked up and saw this face examining me. When I said hello to him and apologized for not being able to give him an amazing birthday, old man Beaux stood up and pushed his way into my lap where he remains laying down. Happy 10th birthday to the sweetest, most loving, silly, patient, little man I could ever ask for. I am so lucky to have had you by my side for a decade. Thank you for taking care of me on your birthday, and for being the best companion ever. I couldn’t have made it this far without you ❤️🐶🎂
#RickSimpsonOil aka my miracle!
And a miracle for sooo many battling #autoimmunedisease 💜 
Rick Simpson was diagnosed with stage 4 pancreatic cancer in a time when we barely knew what cancer even was. He was given morphine and sent off to numb himself into death. He had already been a #cannabisactivist for a long time and was one of the first people using vaping as his method of smoking. Due to the pain he felt he was unable to clean his vape like usual and a thick, tar like, residue began to build up om the inside of the dome. Out of curiosity he tasted it... (Who knows what we are thinking when we believe we are going to die soon... Right?) It tasted like cannabis, and soom after tasting it his tongue began to feel slightly numbed. So he swallowed a gob of the stuff.
That was the first day in months that Rick Simpson did not have to take morphine to deal with the pain he was in. Soon he back to eating food, and soon after he was walking again.... And 6 months later he went to the Doctor who announced his cancer was fading away.
He cured himself of cancer with RSO, and years later a wombyn named #ShonaBanda would embark on a life saving journey to manage her #crohnsdisease with the power of #rso . I'll dedicate a separate post to her 💜 |
#thechronicbellydancer  #dancehealing #divinefeminine #fusionbellydance #spiritualawakening #mixedgirlmagic #goddessenergy #crohnie #crohnsdisease #spoonie #ibdawareness #crohnsdisease #bellydancer #bellydance #bellydancing
#RickSimpsonOil aka my miracle! And a miracle for sooo many battling #autoimmunedisease 💜 Rick Simpson was diagnosed with stage 4 pancreatic cancer in a time when we barely knew what cancer even was. He was given morphine and sent off to numb himself into death. He had already been a #cannabisactivist for a long time and was one of the first people using vaping as his method of smoking. Due to the pain he felt he was unable to clean his vape like usual and a thick, tar like, residue began to build up om the inside of the dome. Out of curiosity he tasted it... (Who knows what we are thinking when we believe we are going to die soon... Right?) It tasted like cannabis, and soom after tasting it his tongue began to feel slightly numbed. So he swallowed a gob of the stuff. That was the first day in months that Rick Simpson did not have to take morphine to deal with the pain he was in. Soon he back to eating food, and soon after he was walking again.... And 6 months later he went to the Doctor who announced his cancer was fading away. He cured himself of cancer with RSO, and years later a wombyn named #ShonaBanda would embark on a life saving journey to manage her #crohnsdisease with the power of #rso . I'll dedicate a separate post to her 💜 | #thechronicbellydancer #dancehealing #divinefeminine #fusionbellydance #spiritualawakening #mixedgirlmagic #goddessenergy #crohnie #crohnsdisease #spoonie #ibdawareness #crohnsdisease #bellydancer #bellydance #bellydancing
We love the Spoonie community 🥄!
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By using the #spoonie hashtag, those with chronic illness are able to reach out and identify with others who have conditions, such as migraines, cluster headaches, lupus, fibromyalgia, rheumatoid arthritis, Crohn’s disease, Sucrose (sugar) Intolerance caused by Congenital Sucrase-Isomaltase Deficiency, anxiety, depression, bipolar disorder, celiac disease, chronic fatigue, interstitial cystitis, spinal stenosis, MS, nerve pain, chronic pain, autoimmune illnesses, and other ailments and illnesses that are not physically apparent.

Using #spoonie has become a measure of solidarity 🤝 for reaching out to find others with invisible illnesses and being able to share common experiences.
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Budgeting energy for daily chores includes everything from taking a shower 🚿 to being able to have dinner 🍽 with friends, or planning things to do around how long it takes to rest up for them.

Spoon Theory is not only a way for those with invisible illness to connect with each other, but also to help others understand the extent of their condition.
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By understanding what life with an invisible illness is like, people are more apt to be sensitive to the issues of having limited energy while still appearing to be reasonably healthy or eliminating the stigma of not looking sick while still living with a chronic disease.

So if you or a loved one is living with an invisible illness, post your experience, strength, and hope on various social sites with #spoonie.
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#invisibleillnesss #chronicillness #spoonielife #spoonie #invisibleillnessawareness #butyoudontlooksick #spooniestrong #invisibledisease #chronicpain #chronicwarrior #autoimmunedisease #chronicfatigue #chronicallyill #spooniesupport #spoonies #endthestigma #spoontheory #sucroseintolerance #chronicpainwarrior
We love the Spoonie community 🥄! . By using the #spoonie hashtag, those with chronic illness are able to reach out and identify with others who have conditions, such as migraines, cluster headaches, lupus, fibromyalgia, rheumatoid arthritis, Crohn’s disease, Sucrose (sugar) Intolerance caused by Congenital Sucrase-Isomaltase Deficiency, anxiety, depression, bipolar disorder, celiac disease, chronic fatigue, interstitial cystitis, spinal stenosis, MS, nerve pain, chronic pain, autoimmune illnesses, and other ailments and illnesses that are not physically apparent. Using #spoonie has become a measure of solidarity 🤝 for reaching out to find others with invisible illnesses and being able to share common experiences. . Budgeting energy for daily chores includes everything from taking a shower 🚿 to being able to have dinner 🍽 with friends, or planning things to do around how long it takes to rest up for them. Spoon Theory is not only a way for those with invisible illness to connect with each other, but also to help others understand the extent of their condition. . By understanding what life with an invisible illness is like, people are more apt to be sensitive to the issues of having limited energy while still appearing to be reasonably healthy or eliminating the stigma of not looking sick while still living with a chronic disease. So if you or a loved one is living with an invisible illness, post your experience, strength, and hope on various social sites with #spoonie. . . . . #invisibleillnesss #chronicillness #spoonielife #spoonie #invisibleillnessawareness #butyoudontlooksick #spooniestrong #invisibledisease #chronicpain #chronicwarrior #autoimmunedisease #chronicfatigue #chronicallyill #spooniesupport #spoonies #endthestigma #spoontheory #sucroseintolerance #chronicpainwarrior
That’s my exercise for today. It’s very difficult to recover from spine surgery with autoimmune diseases and fibro. I’m doing physical therapy and home exercises but I didn’t realize how slow this would be. My low spine feels good but the rest of me is not cooperating. I have a new motto now “It Takes Time”. 💜💜💜💜
That’s my exercise for today. It’s very difficult to recover from spine surgery with autoimmune diseases and fibro. I’m doing physical therapy and home exercises but I didn’t realize how slow this would be. My low spine feels good but the rest of me is not cooperating. I have a new motto now “It Takes Time”. 💜💜💜💜
Success is liking yourself liking what you do and liking how you do it ~ Maya Ange lou!!!Lets start the grind here at#PainRehabilitationInstitute!#NewGoals!
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Remember to give us a call @ 310.618.9922 if you are experiencing chronic pain!
#painmanagement #paindoctor#physiatry #physicaltherapy #wellness#health #southbay #redondobeach#manhattanbeach #torrance #spoonie#spoonies #spooniestrong#chronicpain #chronicillness#chronicpainawareness #backpain#neckpain #arthritis #whiplash#carpaltunnel #fibro #fibrowarrior#mightytogether #52smallthings#recovery #healing#DrJosephPeck
Colour popping up everywhere 🌱 just love it ..... I tend to water everything late in the evening.... what about you? 🌱
Colour popping up everywhere 🌱 just love it ..... I tend to water everything late in the evening.... what about you? 🌱
Batch 6 FOCUS, A citrus forward formulation. Link in bio.
Batch 6 FOCUS, A citrus forward formulation. Link in bio.
At the dr office.  Waiting to do labs, then see my oncologist.  A little anxious.  Wondering if he will send me to a dermatologist or what. .
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.#plussize #chronicillness #chronicpain #weightloss #fibro #ra #rheumatoidarthritis #thyroiddisease #hashimotos #osteoarthritis #spoonie #blog #lifeblog #breastcancer #cancersucks #breasrcancerawareness #chemo #chemohairloss #breastcancersurvivor #warrior #keto #skincancer
I used to count calories and stand on the scale multiple times a day....and you know what??? It depressed ths hell out of me when things weren't moving how I wanted them to. I have stopped doing both of those things, watch what I eat, and somedays I watch bad things go into my body, and I pay attention to how my clothes fit, feel and look. In doing this it makes me a happier person!

#fitnessfoodandforty #addisonsawareness #addisonsdisease #steroiddependenttolive #strongisthenewskinny #workingonme #beingthebestme #adrenalinsuficient #autoimmune #autoimmunedisease #raredisease #adrenalfatigue #awareness #chronicillness #spoonie #mentalhealth #screwthescale #caloriecounting #healthymom #healthychoices #ilovefood #healthyeating #mychoice #weightloss #weightgain #fitnessjourney #weightlossjourney
I used to count calories and stand on the scale multiple times a day....and you know what??? It depressed ths hell out of me when things weren't moving how I wanted them to. I have stopped doing both of those things, watch what I eat, and somedays I watch bad things go into my body, and I pay attention to how my clothes fit, feel and look. In doing this it makes me a happier person! #fitnessfoodandforty #addisonsawareness #addisonsdisease #steroiddependenttolive #strongisthenewskinny #workingonme #beingthebestme #adrenalinsuficient #autoimmune #autoimmunedisease #raredisease #adrenalfatigue #awareness #chronicillness #spoonie #mentalhealth #screwthescale #caloriecounting #healthymom #healthychoices #ilovefood #healthyeating #mychoice #weightloss #weightgain #fitnessjourney #weightlossjourney
The “Carnation” Leather Flexi with 2 Hair Sticks!! This is a really fun look! I’ve lost a lot of hair in the past two months because of a medication change and some health issues. I’ve actually gone down a whole Flexi Clip size!😱 But adding an extra stick gave a much tighter fit. I can actually twist my hair a little differently so that I don’t need to do this, but I thought it would be fun and cute!☺️💞 Our normal flexi clips have attached sticks, but some of our other styles are lone “figure 8’s” that you can mix and match with any of our sticks! #linkinbio
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#lillarose#lillarosestylest#flexiclip#flexiclips#hairclips#longhair#modestblogger#hairblogger#thinninghair#headcovering#wahm#easyhairstyles#spoonie#lillarosehair
The “Carnation” Leather Flexi with 2 Hair Sticks!! This is a really fun look! I’ve lost a lot of hair in the past two months because of a medication change and some health issues. I’ve actually gone down a whole Flexi Clip size!😱 But adding an extra stick gave a much tighter fit. I can actually twist my hair a little differently so that I don’t need to do this, but I thought it would be fun and cute!☺️💞 Our normal flexi clips have attached sticks, but some of our other styles are lone “figure 8’s” that you can mix and match with any of our sticks! #linkinbio . . #lillarose#lillarosestylest#flexiclip#flexiclips#hairclips#longhair#modestblogger#hairblogger#thinninghair#headcovering#wahm#easyhairstyles#spoonie#lillarosehair
I finally got discharged from the hospital after 5 days. Apparently I had sepsis of unknown origin. My WBCs were elevated but I was Asymptomatic and my blood cultures were negative. I was sent home with IV antibiotics & a PICC which I just finished yesterday. •They also interrogated my pacemaker and did an echo. I for sure need a pacemaker revision, but can’t do that until the active infection is gone. The echo showed my Ejection Fraction is low and I’m going into new onset Heart failure 😩💔 This now leaves me unable to be cleared for surgery by my Gyn-Oncologist so my cancerous ovary is going to have to stay a bit longer. 🤞🏼 hoping for some good news sooner or later. I need this body of mine to start working properly or at least do better!
I finally got discharged from the hospital after 5 days. Apparently I had sepsis of unknown origin. My WBCs were elevated but I was Asymptomatic and my blood cultures were negative. I was sent home with IV antibiotics & a PICC which I just finished yesterday. •They also interrogated my pacemaker and did an echo. I for sure need a pacemaker revision, but can’t do that until the active infection is gone. The echo showed my Ejection Fraction is low and I’m going into new onset Heart failure 😩💔 This now leaves me unable to be cleared for surgery by my Gyn-Oncologist so my cancerous ovary is going to have to stay a bit longer. 🤞🏼 hoping for some good news sooner or later. I need this body of mine to start working properly or at least do better!
Pain Management:
(My friends and I use Coffee Enemas, Colonics and Enemas for Detoxing, Fitness, Health, Wellness, Diseases, Illnesses, Pain Management and Weight Management)
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NOTE:
-This information was taken off of the internet.
-Before doing Colonics or Enemas check with your healthcare provider.
=============================
I detox daily with a warm water cleansing enema followed by a coffee enema.
I detox weekly with a colonic followed by a coffee enema.
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#chronic
#chronicillness
#chronicpain
#chronicpainrelief
#painrelief
#painreliever
#painmanagement
#spoonie
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#arthritis
#crps
#endometriosis
#fibroids
#fibromyalgia
#headaches
#inflammation
#jointpain
#lymedisease
#menstrualcramps
#migraines
#musclepain
#nervepain
#pcos
#pms
#trigeminalneuralgia
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Messaging is welcomed.
Pain Management: (My friends and I use Coffee Enemas, Colonics and Enemas for Detoxing, Fitness, Health, Wellness, Diseases, Illnesses, Pain Management and Weight Management) ============================= NOTE: -This information was taken off of the internet. -Before doing Colonics or Enemas check with your healthcare provider. ============================= I detox daily with a warm water cleansing enema followed by a coffee enema. I detox weekly with a colonic followed by a coffee enema. ============================= #chronic #chronicillness #chronicpain #chronicpainrelief #painrelief #painreliever #painmanagement #spoonie . #arthritis #crps #endometriosis #fibroids #fibromyalgia #headaches #inflammation #jointpain #lymedisease #menstrualcramps #migraines #musclepain #nervepain #pcos #pms #trigeminalneuralgia . Messaging is welcomed.