Soo many new hospital letters😂 with more on the way! Just a little update 💜
Things have been tough. I haven’t been able to even be out much. Even though the steroids give me plenty of energy, I can’t move around very easily. My Crohn’s is improving somewhat but it’s very easily triggered, I never know what’ll set it off. Today & possibly for the next few days I’ll be fasting because I can’t deal with the pain I get after eating.
After a few conversations last week about my symptoms, the suspicion is that I may have a RVF (Don’t look that up if you don’t have IBD, not female, are squeamish, etc😂)
I am terrified. I was actually relieved at first because my mind was going crazy with ideas of what could be wrong. But this is not good news.
We don’t know for sure. I have IBD clinic on Thursday where I’ll have some consultation room examinations, but I need more tests ASAP to determine if it is what they think it is.
I can’t start Humira because I have an ongoing UTI & the possibility of an abscess/infection as a result of the RVF (if it is that). I’m on high dose steroids which impair healing but I can’t just come off of them so I have to just keep going!
The day I found out what could be wrong was so difficult. I couldn’t stop panicking and crying. I was really hoping things were about to get better. I would get Humira and get into remission. Get back to my life. But if it is what they think it is, that won’t be the case for now.
But you know what? It’s all going to be okay. I have discovered a new passion for refurbishing houses on sims😂, I’m going to find a new (hopefully not medical related🤦🏾♀️) series to get hooked on. I’m going to make the most of being able to spend time with my family, talking to my friends, including you guys on here 💜. When I decide to eat, I’m going to take advantage of ice cream being my safest food😁😂
I’m going to go through every test, all the poking and prodding, needles and scopes, scans and procedures I need to, to get the answers, in order to get better.
Some days I get so down, thinking things will never get better. But they have to one day. And for now I will make the most of what I have💜